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Associations and Advocacy Groups

StreetWise Resource Guide for People with Disabilities

Family
  • Summary
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Associations and Advocacy Groups

The Associations and Advocacy Groups section of the Resource Guide for Persons with Disabilities is a useful resource. The groups listed in this section are just a few of the many associations, organizations, and advocacy groups for persons with disabilities.

 

Organizations for Persons with All Types of Disabilities

Advocacy

American Association of People with Disabilities (AAPD) is a membership organization working to ensure economic self-sufficiency and political empowerment for Americans with disabilities. Membership is open to everyone – people with a disability, their family, friends, and supporters. The site has information about AAPD, membership benefits, and how to join.

Bazelon Center for Mental Health Law provides legal advocacy for the civil rights and human dignity of people with mental disabilities. The site has alerts and legislative updates, advocacy resources, and information on many issues.

Informational

New Horizons Un-Limited provides information on resources and services. Resource topics include adaptive technology, arts and culture, communication, community, education, employment, finances, health and care, housing, independent living, legislation, recreation and sports, safety and transportation. Resources are also listed by category.

National Organization on Disability (NOD) promotes the participation of people with disabilities in all aspects of life. Some of their programs include EmployAbility, Community Partnership, National Partnership, and Accessible America.

Paws with a Cause trains Assistance Dogs nationally and provides lifetime team support.

Easter Seals provides services to children and adults with disabilities and other special needs. Find an Easter Seals location near you. Services include medical rehabilitation, employment and training, children's services, adult and senior services, and camping and recreation.

Disaster Recovery

Disaster Safety for People with Disabilities: What to Do When Emergency Weather Strikes

Parents Helping Parents provides information on what to do in emergency weather situations from taking general safety precautions to critical situations such as hurricanes, blizzards, landslides, tornadoes and earthquakes.

Disaster Preparedness For Seniors By Seniors

The American Red Cross provides specific steps to preparedness in the event of a disaster for seniors.

Grants for Home Modification: 16 Resources for Homeowners with Disabilities

Home Advisor lists different grants available with additional resources for disability accommodations in the home.

Safe travels: Disaster preparedness on the road

The American Public Health Association's Get Ready campaign helps American prepare themselves for different types of disasters.

How Mortgages Are Affected in Disaster-Prone Areas

Learn how mortgages and other costs of home ownership are affected in diasaster-prone areas from this informative article.

Family Communication Plan for Parents

FEMA provides a worksheet to develop a Family Communication Plan in the event of an emergency. This worksheet helps gather important contact information that may be vital in an emergency.

Emergency Power Planning for People Who Use Electricity and Battery-Dependent Assistive Technology

The Americans with Disabilities Act website provides an emergency power planning checklist on how to provide alternative sources of power.

Emergency Preparedness for People With Disabilities — Guide and Checklist

The American Congress of Rehabilitation Medicine provides a specific guide and checklist on emergency preparedness for people with disabilities in the event of a natural disaster or other public emergencies.

Personal Finance

Extra Help with Medicare Prescription Drug Plan Costs

Medicare beneficiaries can qualify for extra help with their Medicare prescription drug plan costs, estimated to be worth about $4,000 per year. Learn more from the Social Security Administration and see if you qualify.

Personal Finance Guide for People with Disabilities

Disabled people have higher expenses in almost every aspect of life – from food to medical care to utilities – and have additional costs due to their disabilities. Try this resource guide from calculators.org to help manage finances and meet your financial goals.

Blindness and Visual Impairment

American Council of the Blind is a national organization whose purpose is to improve the quality of life for persons who are blind and visually impaired. Membership in the organization is not limited to blind or visually impaired persons. The site has the current and back issues of their monthly publication, The Braille Forum. Also provided is the ACB Radio Station, information about their affiliates, ACB Job Bank, and some helpful resources.

National Federation of the Blind is a consumer and advocacy organization. The site provides sections on employment and training, services and resources, aids and appliances, and publications.

Guide Dogs

Guide Dog Foundation for the Blind provides guide dogs free of charge. They provide training, transportation to and from the school, room and board during the 25-day training program, and after-care services.

Guiding Eyes for the Blind provides guide dogs free of charge including training and life-long follow-up.

The Seeing Eye provides guide dogs for a very low fee, $150 the first dog and $50 for each successor dog. This is a fraction of the total cost to create a match between person and dog, this fee reflects The Seeing Eys's commitment to enhanced independence.

Deafness and Hearing Impairment

Alexander Graham Bell Association for the Deaf and Hard of Hearing is an international membership organization and resource center on hearing loss and spoken language approaches and related issues. Resources on the site include hearing loss information, advocacy services, programs and events, and publications and bookstore.

National Association of the Deaf is a membership organization to promote, protect, and preserve the rights and quality of life of individuals who are deaf or have hearing impairment. Sections include legal rights, advocacy issues, info and FAQs, newsroom, and take action. Topics include advocacy, American Sign Language, captioning, community and culture, education, interpreting, mental health, technology, air travel, assistive technology, emergency preparedness, and much more.

Other Specific Disability Groups

Amputee

Amputee Coalition of America is a national consumer educational organization representing people who have experienced amputation or are born with limb differences.

Cerebral Palsy

UCP National (United Cerebral Palsy) provides information on cerebral palsy and is an advocacy group for persons with any disability. Sections include education, employment, health and wellness, housing, parenting and families, products and services, sports and leisure, transportation, and travel. Check this site out – the information is for more than CP. To find your local UCP, enter your zip code and select your state.

Communication

American Speech-Language-Hearing Association provides information about communication disorders. It has separate sections for professionals, students, and the public. In addition to information, a referral service is also provided.

Down Syndrome

National Down Syndrome Society provides research, information, and advocacy. Sections include about down syndrome; education, development and community life; healthcare; policy; research; affiliates; self-advocates; get involved, and news room.

Multiple Sclerosis

National Multiple Sclerosis Society provides information on multiple sclerosis. Sections include about MS, living with MS, research, get involved, online community, multimedia library, news, and more. To find a local chapter, select your state or enter your zip code.

Spinal Cord Injury/Disease

National Spinal Cord Injury Association provides resources for persons with spinal cord injuries and diseases or conditions with effects similar to spinal cord injuries. The site has lots of information in the A-Z resource listing. Regional affiliate chapters, support groups, and other resources are listed by state.